News, Campaigns and Information

This page will show the latest news from ADKC, campaigns that we are running or supporting, and news from organisations outside of ADKC that we think members will be interested in. Looking for the latest Newsflash? Click here for our Newsletter page.

Current / Latest News.
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Latest News

 

REMINDER: Support if you are worried about money.

There is a new money advice and emergency cash support service available. This is funded by the Kensington and Chelsea Foundation, the Julia and Hans Rausing Trust and the Royal Borough of Kensington and Chelsea. You can enquire about this by contacting one of the partner organisations.

 - Age UK Kensington and Chelsea 020 8969 9105 www.ageuk.org.uk/kensingtonandchelsea

 - Citizens Advice K&C 0808 2787 982 www.citizensadvicekc.org.uk

 - Nucleus Legal Advice Centre 020 7373 4005 www.nucleus.org.uk

 - World's End Neighbourhood Advice Centre 020 7351 5749 www.wenac.org.uk

Click for a PDF leaflet with the same information.

 

REMINDER - Free help and advice with energy bills / changing suppliers .

Green Doctors are offering phone consultations to help you save money and stay out of debt. This consultation is provided by a registered charity for anyone on a low income or over 65 or with a long term health condition or disability. Your Green Doctor will help you • Save money on your energy bills • Switch energy providers to save you money • Access the Warm Homes Discounts • Apply for grants for energy or water debt • Get additional support. You can book a phone appointment by calling (for free) 0300 365 5003 or visiting the website (external link) greendoctors-london.org

NEW - Help disabled people survive the cost of living crisis.

Our friends at Inclusion London and the Disability Poverty Campaign Group have created a cost of living campaign.

It is easy to send a letter to your MP asking for action using their template letter. It is important to share your own story also - just sending the template is not enough. To send a letter, with your own story, click here or type the information into your browser https://actionnetwork.org/letters/help-disabled-people-survive-the-cost-of-living-crisis/

NEW - Disability Strategy "Call for Evidence"

Last year the Government produced and consulted on a "Disability Strategy". After a court case, this was found to be unlawful as there was not a proper consultation that was accessible to all disabled people. Now the government has opened a new consultation about their proposals. If you would like to have a say about the strategy there is more information, in different formats, by clicking this link or by typing https://committees.parliament.uk/committee/328/women-and-equalities-committee/news/171030/call-for-evidence-for-national-disability-strategy-inquiry-in-multiple-formats/

NEW - Vaccine Access in Kensington and Chelsea.

Our colleagues at Family Friends have provided this information.

For general vaccine information and details of who is and isn't eligible, please see here.

Below are a range of locations and links to information on where you can access the COVID-19 vaccine in Kensington & Chelsea.

You can access a vaccine or booster by either:

  1. Booking online

  2. Calling 119 for free

  3. Walking in for an appointment at some local pharmacies, pop-up clinics or walk-in vaccine sites

 

Kensington & Chelsea - Vaccine Bus Schedule

  • Friday 20 May – 10am to 3pm at Berwick Street Market, W1F 0DL

  • Saturday 21 May – 11am to 1pm at Brunel Estate, 123 Westbourne Park, W2 5QL

  • Sunday 22 May - 10am to 4pm outside 45 Earl's Court Square, SW5 9BY

  • Monday 23 May - 11am to 5pm outside Sloane Square tube station, SW1W 8NS

  • Tuesday 24 May – noon to 6pm on Cale Street, SW3 3QU

  • Wednesday 25 May – 10am to 4pm on Golborne Road, W10 5PB, opposite Trellick Tower

  • Friday 27 May - 11am to 5pm outside Porchester Hall/Centre, W2 5HS

  • Saturday 28 May – 11am to 5pm at Gerrard Place, next to Gerrard Street, W1D 5PD (opposite Fire Station)

  • Sunday 29 May – 1pm to 7pm at Kensington Memorial Park, St Marks Road, W10 6BZ

 

Please see here for further information on pop-up clinics, pharmacies, and vaccine information.

 

The amazing WelcoMe app by Neatebox

This is a pan-disability tool that allows disabled people to access venues in an easy and personalised way by presenting a person’s needs to a venue before arrival while educating customer service staff at the same time. This app’s significant ability is extremely impressive to support variety of disabled people’s desires and its effectiveness in breaking down various barriers too.  The WelcoMe website is: https://www.neatebox.com/welcome    

 

More detailed information about the WelcoMe app, provided by Gavin Neate, founder of Neatebox: 

‘’The disabled person downloads the WelcoMe app and fills in a profile.  They look at the participating venues and indicates that they would like to visit.  This triggers training in the venue and informs staff that they will be visiting.  On arrival at the venue the visitor can trigger an “arrival” and this prompts the venue to meet and greet them using all of the “top tips” they have been provided with.  Within 24 hours of the visit, they are asked to provide feedback for the staff to let them know how they did.  

  

The purpose of the service is to improve the ability of the staff member to provide good customer service to all disabled visitors, to improve confidence in the disabled person that they will receive good customer service (even in places they have never been before), and to improve the commercial success of the business whilst at the same time empowering the disabled person to be in charge of their commercial interactions.’’   

  

ADKC Courses. 

ESOL - Speaking and Listening. Online Tuesdays and Fridays 2-4pm starts 17/05/2022 ESOL Flyer

Employability. Online. Wednesday 2-4pm starts 25/05/2022 Employability flyer

Computer Class - Face to Face. Thursday 10-1pm starts 12/05/2022 Computer Class flyer

Please contact Catherine on 07496 345 272 or email LifeLongLearning@adkc.org.uk

 

RBKC would like your help for a Customer Services User Group

The council are looking for people who live, work or study in the borough to form a Customer User Group. Tapping into your good and bad experiences of customer care, the Council wants to co-produce a new set of Service Standards for the Council which will ensure residents know what to expect when they contact us and ensure that they receive the best possible service. 

If you are interested in this vital piece of work, please visit https://consult.rbkc.gov.uk/resources/cas-user-group and complete the online form.

If you would like more information or would like to request a paper copy of the online form please email casusergroup@rbkc.gov.uk or call 020 7361 2080, Monday to Friday 9am to 5pm.

Click here for the pdf leaflet.

 

Council response to advanced questions about Adult Social Care

Before our Disabled Person's Question time in January, members submitted questions about Adult Social Care for Council Officers to respond to. These will be discussed at our Question Time meeting. See details in the article below.  You can download responses by clicking here.

 

Disabled People's Question Time - Social Care PART 2! 23rd March 4.30-6.30

Following the very popular Disabled People's Question Time in January, council officers will be returning to respond to questions that had been submitted and to hear from ADKC members.

INVITATION: Action Disability Kensington & Chelsea And The Royal Borough of Kensington & Chelsea invite local disabled people and their carers to The Disabled People’s Question Time – Adult Social Care Special Part 2. Your chance to question a panel of local decision makers including Cllr Cem Kemahli (Lead Member for Adult Social Care and Public Health) and Senior Officers from RBKC Adult Social Care With introductory remarks from Cllr Anne Cyron - Lead Member for Communities.

 

On Wednesday 23rd March 2022 4.30pm – 6.30pm Via Zoom.

Care charges campaign - send your experiences to Inclusion London.

Our friends at Inclusion London would like your stories about how care charges affect you. They sent the message below about the campaign about care charges: 

We've reached a crucial point in our social care campaign – over the next few weeks, the House of Lords will be debating changes to the Health and Care Bill. There's a key decision deadline in a couple of weeks, so now is the time to put the pressure on.

You can help by sending us a video clip up to  120 seconds (2 minutes) explaining

  • What social care support do you get

  • Tell us how much you get charged

  • Tell us if you pay for social care out of welfare benefits

  • Tell us what you have to go without or cut down on, for example, heating, food, holidays, going out with friends

Please note that we (Inclusion London) will use the clips on social media and our website.

 

If you would like to take part, please send a video clip no longer than 120 seconds (2 minutes) to Inclusion London on WhatsApp using the phone number 07561 064 227, or you can email jon.abrams@inclusionlondon.org.uk  The video can be self-shot or someone else can film you.

 

When filming, please:

1.     Turn the phone or device, so it is in a landscape position

2.     Introduce yourself (if you would prefer to remain anonymous, just leave out your name)

3.     Tell us your story:   what social care support do you get, how much you get charged, if you pay for social care out of welfare benefits,  and what you have to go without or cut down on, for example, heating, food, holidays, going out with friends

 

When you send us your video, please tell us where in the UK you are from. The footage may be used on Inclusion London's website and our social media. By sending us your video, you are agreeing to it being used in this way. Please also make sure that anyone else in your clip has given their consent for you to share it. 

 

Email: If you would prefer to write down your experiences rather than film, please email your story to  Jon.Abrams@inclusionlondon.org.uk

 

If you would like support from ADKC with writing or filming your experiences to send to Inclusion London - please contact Jenny at IndependentLiving@adkc.org.uk

 

Self-counselling Course

Action Disability Kensington and Cheslea invites you to the Self-counselling Course. Starting online on Wednesday 27th January, from 2-4 and continuing for 6 weeks. For more information, please contact Catherine at LifeLongLearning@adkc.org.uk or call 07496 345 272

Click here for the PDF flyer with the same information 

Online survey for people who use the support of a Personal Assistant (PA)

This survey was designed by people who use PAs to get a clearer picture of the challenges faced by people in recruiting and retaining their Personal Assistants since March 2020. 

 

Over 1000 Personal Assistant employers across the country responded to the survey. Once details are compiled and the report published we will provide a weblink.

Reasearch into Teleworking for disabled people.

Besty Lake - a PhD student at Loughborough University - is looking to interview disabled workers who have been working remotely, for her dissertation. If you are a disabled person who has been working remotely and you would be happy to be interviewed,  you can click here to contact Betsy directly for more information. You can click here for the pdf flyer.

Library services consultation for residents who experience sight loss.

Our collegues at the council have asked us to share the following information:

We have a vision where all of our residents are able to access our libraries regardless of whether they have impairments. We want to have conversations with residents in Westminster and Kensington and Chelsea who experience sight loss to understand how the library service can better meet their needs. We will be conducting interviews lasting 45 minutes with visually impaired residents which will be conducted by professional researchers. There will be a £20 voucher thank you for taking part. If you are interested in taking part please email Neil Samson to express your interest in taking part. Spaces are limited and we are looking to get a good range of residents from both boroughs so please get in touch as soon as you can to have the best chance of taking part. You can email Neil Samson at nsamson@westminster.gov.uk or call Neil on 07907675939.

 

Disabled People's Question Time - Adult Social Care Special. 12th January 2022, 4-6.

Action Disability Kensington and Chelsea and the Royal Borough of Kensington and Chelsea invite local disabled people and their carers to the Disabled People's Question Time - Adult Social Care special. 

On Wednesday 12th January 2022 from 4pm until 6pm on Zoom.

Your chance to question a panel of local Adult Social Care decision makers including:

 - Councillor Cem Kemahli - lead member for Adult Social Care and Public Health.

 - Councillor Anne Cyron - lead member for Communities

 - Marcia Richards - Head of Services, Adult Social Care

 - Michelle O'Mahoney - Financial Assessment Manager

 - Viola Bristol - Financial Assessment Officer

Christmas Closing and emergency helplines

While the ADKC services were closed over Christmas and the New Year, we published a list of helplines from other services. ADKC services are running again now, online and by phone, but in case this resource ihas been useful, both documents are still available. Click here for the ADKC Christmas helpline document (Word) / Click here for information on Mental Health Helplines (Word).

Survey about your experience of finding and keeping Personal Assistants (private care staff).​

ADKC would like to share a survey and encourage everyone to who has support from a Personal Assistant - a privately employed care worker - to complete it.

 

The survey was designed by people who are supported by Personal Assistants (PAs), for people who are supported by Personal Assistants ... it asks about your experiences of trying to recruit and retain (find and keep) Personal Assistants over the last 20 months. 

 

The anonymous survey is now closed. 

Health Inequalities Questionnaire.

Our friends and colleagues at NWL Integrated Care Systems and NWL CCG have asked us to share informationa questionnaire about heath inequalities. They write:

 

"We are committed to ensuring that we work collaboratively with our residents who live with disabilities, and that we involve all of our community in the design and ongoing improvement of healthcare services.

As an organisation, we are also committed to reducing health inequalities where they exist and working in partnership with our community to do this.

With this in mind, we have designed a short questionnaire to help us in listening and understanding to the views of those living with disabilities in North West London.

We really appreciate you taking the time to complete this short questionnaire and we look forward to working with you as we work to improve North West London’s healthcare". Click for the surveymonkey questionnaire

COVID vaccines and information

Our friends at North West London Clinical Commissioning Group have asked us to ensure people know where they can find information about COVID 19 vaccinations. Click here for their webpage.

 

Can you help to legally challenge the negative impact for disabled people of the Ultra Low Emission Zone?

We recieved the message below with a call for help:

We are looking for a suitable claimant for a Judicial Review due to the Disability Discrimination of the ULEZ in regards to our Human Rights and the Equality Act for Blue Badge holders in London, since the expansion on the 25th of October. Please note we only have 3 months since the implementation date to seek a Judicial Review.

 

A suitable claimant would, at a minimum, need to be a Blue Badge holder and be affected by the ULEZ charge (whether that be because their own car is non-compliant, or one of the cars in which they frequently travel in is non-compliant). Please contact Kush Kanodia with their details on email: kushuk@gmail.com

We have received pro-bono legal advice and guidance from experts in Disability Rights, Human Rights Law and the Equality Act and believe this case will set legal precedence for Disability Rights for all of the future cities in the UK and globally.

Our campaign focuses on Climate & Social Justice for disabled people who have already been the most disproportionately impacted by the Covid19 pandemic. City Hall failed to support our campaign this week, but we did receive support from multiple UK political parties and have been published with many UK media organisations.

 

 

Please find below some of the recent publication for our ULEZ campaign, these are all just in the last month:

  1. Disabled motorists call for ULEZ exemption as zone is expanded | Evening Standard

  2. ULEZ: Woman with rare condition who relies on taxis to get around fears expansion will make London less accessible - MyLondon

  3. CHIEF DISABILITY OFFICER CALLS FOR HELP TO FIGHT FOR FAIR ULTRA-LOW EMMISSION ZONE (ULEZ) EXEMPTION FOR DISABLED BLUE BADGE HOLDERS | Disability Talk

  4. ULEZ extension: Three in five London drivers are unaware of changes | This is Money

  5. Car tax changes: Campaigners call on Sadiq Khan to give exemptions for Blue Badge holders | Express.co.uk

  6. Expanded pollution charging Ultra Low Emission Zone starts on Monday - YouTube (BBC1 - BBC London)

  7. BBC iPlayer - Politics London - 17/10/2021 (BBC1 - BBC Politics London - Starts 14:40)

These are also the publications previously since the beginning of the campaign:

  1.        Help us fight for fair ULEZ exemption for disabled Blue Badge holders! (crowdjustice.com)

  2.        Expansion of air pollution scheme ‘could have drastic impact on disabled people’ – Disability News Service

  3.        Open letter - Mayor of London candidates | Inclusion London

  4.        London ULEZ charges putting 'unacceptable' barriers in place for disabled people says Paralympic torch bearer - MyLondon

  5.        Calls for ULEZ exemption for disabled people | Royal Borough of Kensington and Chelsea (rbkc.gov.uk)

Thank you for all your help and support, together we can make London the most accessible city in the world!

Lifelong Learning Project introduces more courses!

THE LIFELONG LEARNING PROJECT offers: 

  • Wellness workshops

  • Self Counselling

  • ESOL conversation

  • Assistive Technology course (IT for blind or visually impaired people)

  • IT

  • Peer Support

  • Digital Photography (with your mobile phone)

 

If you would like to register or have more information for any of these courses, please contact Catherine on LifeLongLearning@adkc.org.uk or 07496 345 272.

Click here for the flyer containing the same information

ULEZ campaign gets more publicity. 

Disability News Service - the specialist services that reports on issues impacting on disabled people - is helping to spread awareness about the campaign about the negative effects of the new Ultra Low Emission Zone for Disabled People..

 

If you would like to read the article, click here for Expansion of air pollution scheme ‘could have drastic impact on disabled people

 

Please note - the article mentions a crowd funding campaign but there are ways that you can show your support without spending money - for example by writing to your MP, using social media to raise concerns and signing petitions.

You can also get involved with the ADKC Access Group, which campaigns for better access in Kensington and Chelsea and further afield. If you would like to know more about the group: contact Mariya at access@adkc.org.uk

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

Older news
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Disabled People's Question Time - Social Care PART 2! 23rd March 4.30-6.30

Following the very popular Disabled People's Question Time in January, council officers will be returning to respond to questions that had been submitted and to hear from ADKC members.

INVITATION: Action Disability Kensington & Chelsea And The Royal Borough of Kensington & Chelsea invite local disabled people and their carers to The Disabled People’s Question Time – Adult Social Care Special Part 2. Your chance to question a panel of local decision makers including Cllr Cem Kemahli (Lead Member for Adult Social Care and Public Health) and Senior Officers from RBKC Adult Social Care With introductory remarks from Cllr Anne Cyron - Lead Member for Communities.

ADKC is now on Instagram

If you would like to follow ADKC on instagram for all the latest news and photos, click here or type into your browser https://www.instagram.com/ActionDisabilityKC/

ULEZ campaign update

ADKC's campaign against the harmful effects of the Ultra Low Emission Zone was mentioned in the Evening Standard recently: 

"Mr Khan was asked whether he would adopt a proposal from Action Disability Kensington & Chelsea to allow disabled people with a Blue Badge the same exemptions for the Ulez as for the C-charge." 

 

And here is the link to the article: 

Ulez: Cost of expanding zone could cost £130m, Sadiq Khan confirms | Evening Standard 

Click here to scroll down to read ADKC's open letter to mayoral candidates earlier in the year

 
Open Letter from Access Group to Mayoral Candidates about ULEZ scheme. (pdf) 

Open Letter: We request all the London Mayoral candidates to commit to providing the same reasonable adjustments for disabled people for the extended ULEZ as Congestion Charging Zone.

Dear Mayor of London Candidates,

Action Disability Kensington and Chelsea (ADKC), is a charity in the Royal Borough of Kensington and Chelsea with approximately one thousand members, which is run and controlled by disabled people.

We are requesting that the new Mayor of London and TFL to provide disabled people in London who have a Blue Badge, with the same reasonable adjustments that are currently provided under the Congestion Charging Zone. We believe it is totally unacceptable to impose new barriers which prevent disabled Londoners from accessing critical goods and services during the Covid19 pandemic.

  • Disabled people are the most disproportionately impacted group from the Covid19 pandemic and lockdowns, with 3/5 of all Covid19 deaths being disabled people, whilst only amounting to 17% of the population (Office of National Statistics).

  • Disability is now one of the strongest predictors of poverty - 54% of the those who live in destitution in the UK are disabled people (Joseph Rowntree Foundation).

  • London’s public transport system is inaccessible for many disabled people - only 26% (70 / 270) of our tube stations are fully accessible (Transport for All).

In Jan 2021, the High Court ruled that the Mayor of London and Transport for London’s ‘Streetscape’ initiative as unlawful. The judge noted that 'the needs of people with protected characteristics, including the elderly or disabled', were 'not considered'. The court also highlighted the inadequacy of the Equalities Impact Assessment (EIA) undertaken by TfL, describing parts as 'perfunctory or non-existent' and finding that it 'read as if its purpose were to justify the decision already taken'.

We believe that the Equality Impact Assessment has not considered the needs of disabled people during the Covid19 pandemic to receive help and support from friends, family, carers and helpers. In its current form we believe it would breach of our Human Rights and the Public Sector Equality Duty of the Equality Act 2010. Where a disabled person is put at a ‘substantial disadvantage’ the service provider has a duty to make ‘reasonable adjustments’ or provide the service in a different way.

We are requesting your urgent help and assistance in committing to support disabled people’s health and wellbeing, we have been published in My London and have the support of the Royal Borough of Kensington & Chelsea, the Member of Parliament for Kensington, and Inclusion London.

London ULEZ charges putting 'unacceptable' barriers in place for disabled people says Paralympic torch bearer - MyLondon

Calls for ULEZ exemption for disabled people | Royal Borough of Kensington and Chelsea (rbkc.gov.uk)

There are over 1.2 million disabled Londoners (20% UK population), and we will vote for the people who support us in the national emergency. Thank you so much in advance for your understanding and help for our most critical campaign to support disabled people in the Covid19 pandemic.

Yours Sincerely,

ADKC Access Group

 Invitation to The Disabled People's Question Time - Housing Special

On Wednesday 28th April, from 4-6pm, via Zoom

Your chance to question a panel of housing providers, including:

  • Emily Thomson - Notting Hill Housing's Head of Housing for Kensington and Chelsea,  

  • Miles Lanham - Octavia's Assistant Director of Housing, 

  • Jackie Thomas - Catalyst's Neighbourhood Operation's Manager, 

  • Victoria Stahlmann - RBKC's Senior Housing OT and Housing Health and Disability Team Manager,  

  • Alexandra Blackwood - RBKC's Housing Policy Officer,  

  • Sharon-Leigh Gordon - RBKC's Head of Resident Safety and Repairs. 

NEW Click here for the contact details provided by guests at our for our Housing Special.

 
 
 
 
 
 

​​

ADKC member Kush Kanodia explains how the ULEZ (ultra low emission zone) regulations will cause "unacceptable barriers" for disabled people.

External link -  https://www.mylondon.news/news/west-london-news/london-ulez-charges-putting-unacceptable-20071051

 

ADKC member Jean Davis shares her frustration about the ongoing inaccessibility of the Tube.

External Link - https://www.mylondon.news/news/west-london-news/blind-mum-says-access-london-19916776

 

Campaign to lower supermarket minimum spend and scrap delivery charges. 

ADKC is happy to support this campaign, initiated by Sandip Sodha. There is a letter to the Executives of the 7 supermarkets involved in the priority slots for people who are shielding, asking them to reduce the minimum spend to £5 and scrap the delivery charge. If you want to support this campaign, you can add you name to their letter by clicking (external link) https://actionnetwork.org/petitions/scrap-delivery-charges-and-lower-minimum-spends?source=direct_link&

 

Free help and advice with energy bills / changing suppliers.

Green Doctors are offering phone consultations to help you save money and stay out of debt. This consultation is provided by a registered charity for anyone on a low income or over 65 or with a long term health condition or disability. Your Green Doctor will help you • Save money on your energy bills • Switch energy providers to save you money • Access the Warm Homes Discounts • Apply for grants for energy or water debt • Get additional support. You can book a phone appointment by calling (for free) 0300 365 5003 or visiting the website (external link) greendoctors-london.org

 

Disabled "Blue Badge" parking campaign.

ADKC is happy to be support Kush Kanodia's  campaign to make a simple and compassionate disabled parking policy in London. You can find more information, and send a letter your MP to ask them to support the campaign but clicking (external link)  https://actionnetwork.org/letters/support-us-in-creatinga-standardised-and-compassionate-disabled-parking-policy-for-london

 

ADKC Trauma group - video